Explaining this sort of feeling is ridiculously difficult. What happened went something like this:
"I get tired," people say. Fatigue is not just being tired. Imagine the busiest day of your life, one in which you have been physically active to the point of not being able to lift a finger. A day where you long for your bed and finally stopping and lying down is all you dream of. A day where your muscles fight your every move, stopping you from doing anything you want. Now imagine feeling that way the minute you wake up and you have a day ahead of you to face.
2) Brain Fog
Being unable to remember the small things is common enough but with MS it goes deeper. I had to check what day it was more than once. Not good!
3) Low Mood
This is not depression but it really feels like it. When your brain is foggy and you're Fatigued beyond belief, is it any surprise you feel down? This led to me cancelling plans and arguing with loved ones.
I had to take to my bed and, of course, that had a knock on effect on my sleep at night. It was well after 3AM by the time I got to sleep.
This is not just my reality - it is the reality of thousands of people. And I'm not just talking MS but a whole host of debilitating conditions that, on their best days, you would not know are there. Spare a thought for those who are living this way.
Today I feel a lot better. I'm not as good as I could be but I'm a whole lot better than I was yesterday.
Onward and upwards!